PROMIS Patient-Reported Outcome Measures

PROMIS is a family of patient-reported measures of physical, mental, and social health, from one-domain short forms to the PROMIS-29 profile. Every score is a T-score: 50 is the average for the reference population, and every 10 points is one standard deviation. See what each score means, which way each domain runs, and how much change matters, then record the result with the free template.

  • Score bands explained
  • Recording template to copy
  • Two recorded examples

PROMIS result template

Free
PROMIS RESULT

Date: [Date]
Patient: [Name or ID, age]
Reason: [Baseline, follow-up, re-evaluation, or discharge]

MEASURE
Measure and version: [PROMIS-29 Profile v2.1, a short form such as Anxiety 8a, a CAT, or Global Health]
Administration: [Paper, patient portal, or clinic tablet; self-completed or read aloud; language]
Scoring: [Scored by the platform, the HealthMeasures Scoring Service, or the scoring manual table]

T-SCORES
Higher is worse: [Each symptom domain with its T-score and severity label]
Higher is better: [Each function domain with its T-score and severity label]
Pain intensity: [0 to 10, or not part of this measure]

CHANGE OVER TIME
Baseline: [Date and T-score for each domain]
Change: [Points up or down for each domain since baseline]
Meaningful change: [Domains that moved 5 points or more, and which way]

CLINICAL READING
Context: [Diagnosis, treatment so far, and what the history and exam show]
Interpretation: [What the scores mean for this patient, and where they agree or disagree with the exam]

PLAN
Next step: [Continue, change treatment, refer, or discharge]
Goal: [Target T-score for each tracked domain]
Repeat: [Measure, and the date or interval]

Clinician: [Name, credentials]

Get the official PROMIS from its source.

Who holds it

PROMIS Health Organization. Developed by the PROMIS network with NIH funding from 2004, and distributed by HealthMeasures at Northwestern University.

How you may use it

The PROMIS measures are copyrighted. HealthMeasures gives out paper forms of the English measures free, with its scoring service, scoring manuals, and cut point figures. Translated forms and digital use in your own software carry per-measure fees, except for a single non-commercial research study in English. Record systems and survey platforms that include PROMIS usually handle the license.

Use it for

  • Physical therapy outcomes
  • Orthopedic follow-up
  • Chronic pain care
  • Therapy progress tracking
  • Primary care check-ins
  • Research and registries

What the score means. 20 to 80, T-score, for a symptom measure such as pain interference or anxiety.

20 to 55: Within normal limits

In the range most people report. No action on the score alone; keep tracking it if the domain is a treatment target.

56 to 60: Mild

Up to one standard deviation worse than average. Ask about it, note it, and recheck at the next visit or after a change in treatment.

61 to 70: Moderate

One to two standard deviations worse than average: most people report less. Address it in the plan, and track it with the same measure.

71 to 80: Severe

More than two standard deviations worse than average, worse than about 98% of people. Make it a priority: assess it in depth, and refer when it’s outside your scope.
  • Each domain gets its own T-score. For most adult measures the reference population is a sample matched to the 2000 US census, set to an average of 50 with a standard deviation of 10: 60 is one standard deviation above average, 40 one below.
  • A higher score always means more of what the domain measures. For symptoms such as anxiety, depression, fatigue, sleep disturbance, and pain interference, higher is worse. For function, such as physical function and taking part in social roles and activities, higher is better.
  • The bands above are HealthMeasures’ cut points for symptom domains: 55 or below is within normal limits, above 55 to 60 mild, above 60 to 70 moderate, and above 70 severe. T-scores are reported as whole numbers.
  • Function domains run the other way. For physical function, HealthMeasures draws the lines at 45, 40, and 30: 45 or above is within normal limits, 40 to 44 mild, 30 to 39 moderate, and below 30 severe.
  • Some domains use their own labels and lines. Global Health, for example, rates physical and mental health from excellent to poor. Check the figure for your domain on HealthMeasures.
  • The cut points are general guides, set mostly from how scores spread in the population. Studies in cancer, chronic pain, rheumatic conditions, and fractures have set thresholds for those groups.
  • Meaningful change: for one patient, usually 5 to 7 points, with 5 a reasonable lower bound; for groups, 2 to 6 points, with 3 reasonable in most settings. It varies by measure and by where the patient starts.
  • The figures run from 20 to 80, which covers more than 99% of people, but each form has its own range. The 4-item anxiety short form starts at about 40, so a patient with no anxiety scores about 40, not 20.
  • Children have their own measures and figures: pediatric self-report from age 8, and parent-report forms that also cover younger children. For some pediatric measures, version 3 cut points sit 5 points higher than version 2.

How to give it, score it, and read it.

Choosing a measure

Pick the domains that match the goal of care, then the format: a short form for one domain, a computer adaptive test where your software runs one, the PROMIS-29 for a broad picture, or Global Health for a quick summary.

  • Physical function and pain interference for rehab; anxiety and depression for therapy
  • The PROMIS-29 covers seven domains with four items each, plus a 0 to 10 pain rating
  • Adult forms from age 18; pediatric and parent-report forms for children
  • Get the official form from HealthMeasures or a platform licensed to give it

Avoid: Writing your own version. Changing or dropping items breaks the scoring, and the measures are copyrighted.

Giving it

The patient completes it on paper, through a portal, or on a clinic tablet. Most domains ask about the past 7 days; physical function asks what the person can do now.

  • Let the patient answer on their own; read items aloud word for word when reading is hard
  • Use an official translation for patients who prefer another language
  • Give it at the same point in care each time, such as before the session starts

Avoid: Helping the patient pick answers. The score is their view, not yours.

Scoring

Each domain gets its own T-score. Software scores CATs and digital forms on its own; for a paper short form, convert the raw sum with the scoring manual’s table or the free HealthMeasures Scoring Service.

  • Score each domain on its own, and never add domains together
  • With missing answers, use the Scoring Service, which scores the answers given; a precise score needs at least 4 answered items
  • Record T-scores as whole numbers

Avoid: Recording the raw sum as the score. A raw total can’t be compared with the cut points or with a different form; only the T-score can.

Reading the score

50 is the average for the reference population. Check which way the domain runs before you name a severity.

  • Symptom domains such as anxiety, fatigue, and pain interference: higher is worse
  • Function domains such as physical function and social roles: higher is better
  • Name the severity from the HealthMeasures figure for that domain
  • With a high depression score, ask about thoughts of self-harm directly rather than relying on the form

Avoid: Diagnosing from a T-score. An anxiety score of 65 shows more anxiety than most people report, not which disorder it is.

Tracking change

Repeat the same domains at set points, such as every few sessions and at discharge, and compare with baseline.

  • For one patient, look for about 5 points before calling it change; smaller shifts can be measurement error
  • Short forms, CATs, and profiles drawn from the same item bank share one scale, so their scores compare
  • Set goals as T-scores, such as physical function back to 45 or above

Avoid: Switching to a different domain or measure system midway. Keep the domain the same so the trend means something.

Two recorded results. Every part, filled in.

Each one follows the recording template. Use them to judge how much to write.

PROMIS-29 result: chronic low back pain, 8 weeks into physical therapy

Outpatient physical therapy, week 8 re-evaluation, profile completed on a clinic tablet

Measure

PROMIS-29 Profile v2.1, self-completed in English on the clinic tablet before the session and scored by the platform. Baseline taken at the evaluation on September 12.

T-scores

Higher is worse: pain interference 57, mild; sleep disturbance 53, fatigue 52, anxiety 51, and depression 48, all within normal limits. Higher is better: physical function 44, mild; social roles and activities 47, within normal limits. Pain intensity 4 of 10.

Change over time

Baseline: pain interference 64, moderate; physical function 38, moderate; social roles 42, mild; sleep disturbance 57, mild; pain intensity 7. Pain interference down 7 and physical function up 6, both past the 5-point mark. Social roles up 5. Sleep down 4: probably better, not yet clear. Anxiety, depression, and fatigue moved 2 points or less.

Clinical reading

52-year-old warehouse supervisor with low back pain for 14 months, no leg symptoms or neurological signs. Now carries groceries up two flights of stairs and sits through a 45-minute meeting, up from 20 minutes. The scores agree with the exam: real gains in how much pain gets in the way and in function, with physical function still just under the normal range.

Plan

Continue physical therapy, down from twice a week to once a week for 4 weeks: progress lifting and core work, and update the home program. Goal: physical function 45 or above, pain interference 55 or below. Repeat the PROMIS-29 at discharge in 4 weeks.

Common mistakes, and how to avoid them.

Reading every domain the same way

A physical function score of 38 is poor; an anxiety score of 38 means very little anxiety. Check whether higher is better or worse before you label it.

Recording the raw total

A raw sum isn’t a PROMIS score. Convert it to a T-score, or it can’t be compared with the cut points, earlier visits, or other forms.

Calling small shifts progress

For one patient, 2 or 3 points can be measurement error. Look for about 5 points before you record a change.

Adding domains together

There is no PROMIS-29 total. Each domain has its own T-score; adding them gives a number with no meaning.

Treating a cut point as a diagnosis

The bands say how a score compares with the population. The diagnosis still comes from the history and exam.

Read out the T-scores. Check the note.

Vero Scribe records the PROMIS result in your template from the visit, with the patient’s consent, or from your dictation: each domain’s T-score, which way it runs, the change from baseline, and the plan. You review and edit every line, then copy it into your record. Vero works in 60+ languages.

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Frequently asked questions.

What is PROMIS?

PROMIS, the Patient-Reported Outcomes Measurement Information System, is a set of more than 300 measures of physical, mental, and social health, developed with NIH funding from 2004. It includes item banks, short forms of 4 to 10 items, computer adaptive tests, profiles such as the PROMIS-29, and Global Health. All of them score on the same T-score scale.

How is PROMIS scored?

Each domain gets its own T-score. Software scores CATs and digital forms automatically. For a paper short form, add the item responses for a raw sum, then convert it with the table in the HealthMeasures scoring manual, or upload the answers to the free HealthMeasures Scoring Service, which is more precise and handles missing answers. Domains are never added together.

What does a PROMIS T-score mean?

A T-score compares the patient with a reference population, usually the general population: 50 is average, and every 10 points is one standard deviation. A higher score means more of the domain, so higher is worse for symptoms such as pain interference or anxiety, and better for function such as physical function.

What are the PROMIS cut points for mild, moderate, and severe?

For symptom domains such as anxiety, depression, and pain interference, 55 or below is within normal limits, above 55 to 60 mild, above 60 to 70 moderate, and above 70 severe. For physical function the lines are 45, 40, and 30, running the other way. These are general guides; some domains use other labels, and studies in specific conditions have set their own thresholds.

How much change in a PROMIS score is meaningful?

HealthMeasures puts meaningful change for one patient at about 5 to 7 T-score points, with 5 a reasonable lower bound. For comparing groups, 2 to 6 points, with 3 reasonable in most settings. The exact figure varies by measure and by how severe the starting score is.

How is PROMIS different from the QuickDASH or LEFS?

The QuickDASH and LEFS ask about one region, the arm or the leg, each on its own scale. PROMIS Physical Function covers the whole body and daily activities on a T-score compared with the general population, so results compare across conditions. Many clinics use both: a region-specific measure for the injury, and PROMIS for overall function, pain, and mood.

Who can give PROMIS?

Anyone on the care team can hand it out. Patients complete it themselves, and no special training is needed to give it; the clinician reads and acts on the scores. Adult forms are for ages 18 and up, pediatric self-report forms start at age 8, and parent-report forms cover younger children.

Is PROMIS free to use?

Paper forms of the English measures are free to download from HealthMeasures, and so are its scoring service, scoring manuals, and cut point figures. Translated forms and digital use in your own software carry per-measure fees, except for a single non-commercial research study in English. If your record system or survey platform already includes PROMIS, it usually handles the license. The recording template on this page is free to copy or download.

More function and pain tools, and templates.

Katz ADL

Six basic self-care activities rated independent or dependent, scored 0 to 6, for function and care needs in older adults.

Open the Katz ADL

Lawton IADL

Eight independent living tasks, from shopping to finances, each scored 0 or 1: a total from 0, dependent, to 8, independent.

Open the Lawton IADL

QuickDASH

Eleven questions on arm, shoulder, and hand function over the past week, scored 0 to 100: the higher, the more disability.

Open the QuickDASH

LEFS

Twenty everyday activities rated for difficulty: lower limb function scored 0 to 80, higher is better, and 9 points is a real change.

Open the LEFS

KOOS

Forty-two questions on one knee over the past week: five subscales, each scored 0 to 100, where 100 means no knee problems.

Open the KOOS

Physical therapy evaluation template

The first visit: history, exam, outcome measures, and the plan of care.

Learn more about Physical therapy evaluation template

Physical therapy progress report template

Re-evaluation with outcome scores compared against baseline.

Learn more about Physical therapy progress report template

Treatment plan review template

Goal by goal, with scores over time.

Learn more about Treatment plan review template

Vero for physical therapy

Evaluations, daily notes, and progress reports from the session.

Learn more about Vero for physical therapy

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