Personal and emergency contact information
Enter the person's name, birth date, address and phone, plus one emergency contact with relationship and phone. Because this version is used outside school, the emergency contact is the person caregivers, coworkers or camp staff will call when the plan says to notify someone, so it should be someone reachable wherever the patient spends the day.
Seizure Information
Four rows, each with Seizure Type, How Long It Lasts, How Often and What Happens. Describe each type in plain words a bystander would recognize, with its usual length and frequency. Readers use the What Happens column to recognize the patient's typical events and to spot one that is different.
How to respond to a seizure (check all that apply)
Check the steps you want caregivers to take: first aid (Stay. Safe. Side.), give rescue therapy according to the plan, notify the emergency contact, call 911 for transport to a named hospital, or other. This box is the summary a babysitter or coworker reads first, so check only the steps that apply to this patient.
First Aid for any seizure, When to call 911, When to call your provider first
The first aid list covers staying calm and timing the seizure, keeping the person safe, turning on the side if not awake, staying until recovered, swiping a VNS magnet and writing down what happens. The 911 list includes loss of consciousness over 5 minutes and repeated seizures over 10 minutes without recovery. The provider-first list flags pattern changes, a slow return to usual behavior and pregnancy.
When rescue therapy may be needed: When and What to do
Up to three orders, each with the trigger in 'If seizure (cluster, # or length)', the Name of Med/Rx, How much to give (dose) and How to give. A caregiver outside a clinical setting will act on these lines alone, so state the trigger as a count or a length of time and the route in plain words.
Care after seizure and Special instructions
Describe what help the person needs after a seizure and when the person can resume usual activity. Special instructions are addressed to First Responders and the Emergency Department, so this is where to note anything paramedics or the emergency team should know about this patient's seizures and treatment.
Daily seizure medicine
Four rows for Medicine Name, Total Daily Amount, Amount of Tab/Liquid, and How Taken (time of each dose and how much). The list gives camps and caregivers the dose schedule they may need to supervise and gives emergency staff the current regimen. Keep it in line with the current prescriptions.
Other information
Record triggers, important medical history, allergies, epilepsy surgery (type, date, side effects), device (VNS, RNS or DBS) with date implanted, diet therapy (ketogenic, low glycemic, modified Atkins or other) and special instructions. These fields round out the picture for anyone treating the person in an emergency.
Health care contacts and signatures
List the epilepsy provider, primary care, preferred hospital and pharmacy with phone numbers. The plan closes with 'My signature' for the patient or parent and 'Provider Signature' for the clinician, each dated. The provider's signature is what turns the rescue therapy lines into orders a caregiver can follow.